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ABSTRACT
Objectives: The
aim of this study was to investigate patterns
in disability prevalence among older persons and
their health care seeking behavior and to see
how they vary between the two selected states,
which vary in socioeconomic and demographic conditions.
Methods: Data from
the 58th round of National Sample Survey (NSS)
on disabled persons was utilized. The states in
focus were Kerala, the state well advanced in
health transition processes and Uttar Pradesh,
the state lagging in these processes. Multivariate
logistic regression techniques were used to model
socio-demographic determinants of disability prevalence
among older persons and their treatment seeking
behavior.
Results: Overall
prevalence of disabilities was higher in Kerala
compared with Uttar Pradesh. Locomotion, speech
and hearing disabilities were more prevalent in
Kerala. Correspondingly, prevalence of visual
disabilities was lower in Kerala compared with
Uttar Pradesh. Older persons in Kerala had greater
likelihood of seeking treatment for reported disabilities.
Conclusion: This
article documented critical evidence that both
the disability and health care utilization rates
are on the rise among older persons. At the same
time, substantial disparities are demonstrated
in the pattern of disability prevalence and health
care utilization among older persons by socio-demographic
factors and between Kerala and Uttar Pradesh.
Keywords: Aging,
disability, health care, older persons.
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INTRODUCTION
Amidst socio-economic consequences
of demographic transition, increases in the percentage
of those over 60 years and decreases in those under
15 years, so called population ageing, was the most
noteworthy global phenomenon in the last century and
will surely remain a distinctive trait of population
dynamics in the twenty-first century. This process of
demographic ageing no longer relates solely to developed
countries, it has taken developing countries into its
grip (Agrawal & Arokiasamy, 2009; Dadkhah, 2009;
Harper, 2006).
In contrast with the relatively
slow process of population ageing experienced by most
of the developed countries, developing countries are
greying at a faster pace (United Nations, 2002).
Many developing countries are currently experiencing
a rapid fertility decline and recent scientific and
industrial advancements in medical and health care facilities
have provided effective treatment and prevention of
fatal diseases. These altogether have led to the increased
longevity and consequently a rapid pace of population
ageing. Currently two-thirds of the world's elderly
population is living in developing countries and it
is estimated to be doubled in the next 25 years (Harper,
2006). Fastest developing economies like China and
India will not only be in the forefront in terms of
total population but also in terms of absolute number
of elderly (60+) population (Bose, 2004). In
India, the percentage share of elderly population (60+)
is 8.1 percent in 2007, which is projected to be 20
percent by 2050 (United Nations, 2007).
However, the million dollar
question is whether demographic ageing, couples with
the reduced burden of disease and disabilities. There
is no denying the fact that the added years of life
are often accompanied by chronic physical and psychological
impairments (Alam, 2000; Konjengbam, et al., 2007;
Kover, 1991; Nagi, 1976; Nayar, 199; Shrestha, 20006;
Sobba & Reddy, 2006). These added years may
possibly be lived by them under the increased morbidity
due to age related chronic illnesses and disabilities.
People value longevity improvements more when the quality
of life of the additional years is high. Living longer
but with disabilities is nowhere near as enjoyable as
living longer with good health (Cutler, 2001).
A bound volume of literature on ageing and disability
facilitated to proceed with the pertinent notional perspective.
The evidence on demographic ageing and disabilities
in developed countries are well documented and mixed
trends are observed in disability prevalence among older
persons. Some have been alarmed about the possibility
of rising disability rates (AIHW, 2000; Braithwaite,
2008), and others have documented evidence of falling
disability rates (Cutler, 2001; Khaw, 1997; Manton,
2002; Murabito, 2008; Spillman, 2004; Waidmann et al.,
2000; Wolf, 2005). Furthermore, disability is found
an important determining factor of Medicare costs among
elderly persons. Elderly persons with disabilities are
at higher risk of spending a greater proportion of family
income on it (Drabek, 1994; Liu et al., 1997; Spillman,
2004).
There are very few empirical
research based studies on disability status of elderly
persons from developing countries (Konjengbam, et.al.,
2007; Pandey, 2009; Parahyba, 2009; Prakash, 2003; Sengupta
& Agree, 2003; Shah, 1997; Yount & Agree, 2005).
In India, very little information is available about
disabled older persons and studies are often based on
limited samples. Keeping this perspective in view, there
is a critical need to assess the patterns in disabilities
among older persons and their health care seeking behavior
with respect to socio-economic and demographic determinants.
National Sample Survey (NSS-58) data which contains
information on disabled population is the most recent
data. The data provides a valuable opportunity to study
the patterns in disability prevalence among older persons
and their treatment seeking behavior with respect to
their socio-economic and demographic characteristics.
Table 1 Selected socio-demographic
indicators in Uttar Pradesh, Kerala and India
| Socio-demographic
indicators |
Kerala |
Uttar Pradesh |
India
|
| Infant Mortality
Rate (IMR)1 |
14 |
73 |
58 |
| Total Fertility
Rate (TFR)2 |
1.9 |
3.8 |
2.7 |
| Under-5 Child
Mortality1 |
3.0 |
24.7 |
17.3 |
| Life expectancy
at birth (e00)3 |
74.0 |
60.0 |
63.5 |
| Aging Index4 |
40.2 |
17.2 |
21.1 |
| Percent older
adults (age 60+)4 |
10.5 |
7.0 |
7.4 |
Sources:
1 Registrar General, Sample Registration System
(SRS) Bulletin, 2005, office of Registrar General, New
Delhi.
2 International Institute for Population Sciences, National
Family Health Survey (2005-06) India Report, Mumbai.
3 Registrar General, SRS based abridged life table,
2002-06, office of Registrar General, New Delhi.
4 Registrar General, Census of India, 2001, Office of
Registrar General, New Delhi.
Note: Ageing index is
defined as the percentage of older adult (60+) population
to children population below age 15 years.
Considering the proportion of
older persons, this study made an effort to work out
comparative picture of patterns in disability prevalence
and health service coverage between the two selected
states and to see how they vary between the two states
which vary in socioeconomic and demographic conditions.
The study focus in this analysis in two selected states
at varying stages of demographic transition namely Kerala
and Uttar Pradesh (Table 1). The study aims to contribute
to the ongoing debate whether disability prevalence
tends to decline with demographic transition or is it
a reversal of trends observed in developed countries.
The differences in the pace of demographic transition
and ageing between the two states can be seen from Table
1. The lower rates of infant mortality, under-5 child
mortality, total fertility rate and the comparatively
greater life expectancy at birth, ageing index and the
percent share of older adults (60+) confirms the advancement
of Kerala in demographic and ageing transitional processes.
This comparative assessment of two states differing
in health transition processes will help to understand
the changing disability profile among older persons
in the course of demographic transition in India.
METHODS AND MATERIALS
The study used data from the
58th round of National Sample Survey (NSS) on "Disabled
persons". Five types of disabilities: Mental, Visual,
Hearing, Speech and Locomotion were covered in this
round. In this round, a total of 70,302 household were
surveyed, 45,571 from rural and 24,731 from urban areas.
Data was gathered by face-to-face interview of each
member of every sample household.
In the 58th round of NSSO, a total of 43,864 older persons
(60+) were surveyed at the national level, out of which
the number of aged persons surveyed in Uttar Pradesh
and Kerala were 5,702 and 2,434 respectively. To have
an appraisal of patterns in disabilities among older
persons, disability prevalence rates were defined as
the ratio of the number of older persons who reported
a specific disability, to sample population (60+) eligible
to report a disability.
Multivariate logistic regression
models were estimated to study the patterns in disability
prevalence by socio-economic and demographic predictors
of older adults. The dependent variable was defined
in two mutually exclusive categories: coded '1' for
reporting a specific disability and '0' for others.
The category '0' includes all those older persons who
did not report any disability or had reported a disability
other than the disability defined as a positive outcome
in the regression model.
Binary logistic regression models were further estimated
to examine differentials of treatment seeking behavior
among older persons. The dependent variable was dichotomized
with value '1' if an older person received any treatment
for the reported disability, otherwise '0'. The analysis
on health care utilized the sample of older adults who
reported any disability at the time of survey. Appropriate
weights were applied in all the statistical analyses
performed in this paper. STATA 9.0 program was used
for all statistical analyses carried out in this paper.
Cataloguing of Predictor
Variables
The influence of socio-economic and demographic factors
on disability prevalence patterns and treatment seeking
behavior were estimated using multivariate logistic
regression models. Evidence suggests that disability
prevalence among older persons and their behavior of
accessing health care services vary remarkably by socio-economic
and demographic factors. In the light of evidence documented
in previous literature, the predictor variables included
in multivariate regression models were age, sex, residence,
living status, social group, educational level, monthly
per capita expenditure (MPCE) quintiles, and living
arrangements of older adults. The variables education
and living arrangement were canvassed only for disabled
persons, therefore could not be considered as predictors
of disability prevalence among older persons. The categorization
of predictor variable is described below.
Age: 60-64 (ref.), 65-74 and 75+
Sex: Male (ref.) and Female
Residence: Rural (ref.) and Urban
Living status: This variable was defined to capture
the effect of spouse loss on disability prevalence and
health care utilization among older persons. It had
two categories: living with spouse and living without
spouse with the former as a reference category. The
category included never married, widowed/widower, divorced
and separated older persons
Education: Literate and Illiterate (ref.)
Monthly Per Capita Expenditure (MPCE): This variable
of quintile distribution was obtained by dividing the
total household expenditure by the household size and
then distributing households into three equal percentile
groups.
Social group: Scheduled castes/Tribes (SCs/STs),
Other backward classes (OBCs) and Others (ref.)
Living arrangement: Living with family (ref.),
Living without family members and Living with others
ref. = reference category
RESULTS
Disability Prevalence Among
Older Persons
Figure 1 established the ensuing patterns in disability
prevalence among older persons with the progress in
aging process measured in terms of aging index across
the states. Across the major states of India, the prevalence
of disability among older persons gradually increased
with the encroachment in aging process. Jharkhand and
Bihar positioned on the bottom line of the aging process
in the country displayed the lowest prevalence of disability
by 32 percent and 36 percent, respectively. Compared
with this, Tamil Nadu (58 percent) and Kerala (53 percent)
having the highest values of aging index across the
major states were documented with highest prevalence
of disability in the country.

In summary, the state comparisons of aging-disability
prevalence linkages suggest ample evidence that advancement
in the aging process in India has resulted in increasing
prevalence of disabilities among older persons.
Table 2 depicts a comparative
picture of disability prevalence per 1000 persons by
different types of disabilities and by sex and residence
among older persons in Uttar Pradesh and Kerala. Overall,
the disability prevalence was almost 1.2 times higher
in Kerala (528) compared to Uttar Pradesh (437). Among
older persons, the prevalence of all types of disabilities
except visual disabilities was greater in Kerala compared
with Uttar Pradesh. In Kerala, locomotion disabilities
(222) were highly prevalent followed by hearing (125),
visual (113) and mental disabilities (39). In Uttar
Pradesh, visual disabilities (180) were highly prevalent
among older persons followed by locomotion (161) and
hearing disabilities (77). Apparently, Kerala, a demographically
built-up state is experiencing a higher prevalence of
locomotion and mental disabilities as a result of sedentary
lifestyles.
Substantial differentials were
observed in disability prevalence among older adults
by sex and residence (Table 2). In both the states,
all types of disabilities except locomotion were concentrated
more in rural than urban areas. In rural Uttar Pradesh,
the most prevalent disabilities were visual (190) and
locomotion disabilities (150). Hearing and mental were
next highly prevalent disabilities. Correspondingly,
locomotion (216), hearing (130) and visual disabilities
(113) emerged as the most prevalent disabilities in
rural Kerala. The urban areas of Uttar Pradesh were
contrasted with more widely prevalent disabilities of
locomotion (220) and visual (114) followed by hearing
disabilities (79). Nevertheless, similar patterns prevailed
in Kerala.
Table 2 Disability prevalence
(per 1000) among older persons (60+) in Uttar Pradesh
and Kerala, 2002
| Type
of Disability |
Uttar Pradesh |
Kerala |
| Male |
Female |
Total |
Male |
Female |
Total |
| Mental |
U |
10 |
8 |
9 |
28 |
35 |
32 |
|
R |
8 |
12 |
10 |
31 |
48 |
41 |
| |
T |
8 |
12 |
10 |
31 |
45 |
39 |
| Visual |
U |
98 |
130 |
114 |
117 |
109 |
112 |
| |
R |
162 |
224 |
192 |
88 |
132 |
113 |
| |
T |
152 |
209 |
180 |
95 |
126 |
113 |
| Hearing |
U |
99 |
58 |
79 |
88 |
120 |
106 |
| |
R |
78 |
76 |
77 |
122 |
137 |
130 |
| |
T |
81 |
73 |
77 |
113 |
133 |
125 |
| Speech |
U |
22 |
16 |
19 |
34 |
17 |
24 |
| |
R |
8 |
6 |
7 |
45 |
20 |
31 |
| |
T |
10 |
7 |
9 |
42 |
19 |
29 |
| Locomotion |
U |
237 |
203 |
220 |
297 |
200 |
242 |
| |
R |
178 |
121 |
150 |
232 |
205 |
216 |
| |
T |
187 |
134 |
161 |
248 |
204 |
222 |
| Any
disability |
438 |
435 |
437 |
529 |
526 |
528 |
| U-
Urban R- Rural T- Total |
Between the two sexes as a whole,
the disability prevalence was marginally higher among
male older adults than females in both the states. However,
female older persons reported greater prevalence of
mental, visual and hearing disabilities in both the
states. In contrast, the prevalence of locomotion and
speech disabilities was more among males than females.
Determinants of Disability
Prevalence
The estimates of odds ratios from logistic regression
analyses on the likelihood of reporting various disabilities
among older persons in Uttar Pradesh and Kerala are
presented in Table 3. In both the states, older persons
residing in rural areas had greater likelihood of reporting
disabilities compared with those in urban areas. Contrastingly,
locomotion disabilities were more prevalent in urban
areas. Females were less likely to report any disability
except mental in both the states.
Increasing age is often associated
with increasing physical and mental impairment and consequently,
oldest-old persons had greater likelihood of reporting
disabilities (Chanana & Talwar, 1987; Sengupta
& Agree, 2003). Surprisingly, mental disabilities
were more pronounced among older adults in age 60-64.
Predictor monthly per capita expenditure quintiles showed
positive direction of impact on the disability prevalence
among older adults. The likelihood of reporting disabilities
increased with MPCE quintiles. The similar pattern was
observed for all types of disabilities except speech
disabilities. In both of the states, older persons with
higher income quintiles had lower chances of reporting
speech disabilities.
Social status had prominent
alliance with the likelihood of reporting disabilities
among older persons. Older persons from backward social
groups i.e. SCs/STs and OBCs had greater likelihood
of reporting disabilities compared with older persons
of other castes. However, this was contrasted with the
greater likelihood of reporting hearing disabilities
among other caste groups in Uttar Pradesh. In Kerala,
older persons of SCs/STs and OBCs were less likely to
report speech disabilities.
Living arrangement had shown
plausible association with the reporting of disabilities
among older persons. In both states, older persons living
without spouse had higher likelihood of reporting disabilities
compared with older persons living with spouse.
Health Care Services Among
Older Persons
Table 4 portrays a comparative picture of treatment
seeking behavior among older persons who reported disabilities
between Uttar Pradesh and Kerala. Age was negatively
associated with utilization of health care services
in both the states. Older persons residing in urban
areas had greater chances of accessing health care services.
In Uttar Pradesh, urban dwellers were 1.8 times more
likely to seek treatment for reported disabilities compared
with rural older inhabitants. However, disparities in
health care utilization by residence were comparatively
lower in Kerala. In Uttar Pradesh, female older persons
were 14 percent less likely to seek treatment for reported
disabilities compared with male older persons. This
was contrasted in Kerala with 1.5 times higher chances
of accessing health care among female older persons.
Such reversal of trend possibly arises as result of
differences in health transition stages in these two
states.
Table 3 Logistic regression modelling of socio-demographic
factors of disability prevalence among older persons
in Uttar Pradesh (N=5702) and Kerala (N=2434), 2002
- click
here to view
Table 4 Logistic Regression
Analyses: Modelling background factor of treatment seeking
behaviour among older persons in Uttar Pradesh and Kerala,
2002
| Background
Variables |
Uttar
Pradesh (N= 2380) |
Kerala
(N= 1213) |
Exp
(β) |
(95%
CI) |
Exp
(β) |
(95%
CI) |
| Residence
(ref.= rural) |
|
|
|
|
| Urban |
1.84*** |
(1.29-2.63) |
1.17 |
(0.83-1.66) |
| Sex
(ref.=male) |
|
|
|
|
| Female |
0.86 |
(0.69-1.08) |
1.50** |
(1.02-2.20) |
| Age
(ref.= 60-64) |
|
|
|
|
| 65-74 |
1.14 |
(0.88-1.49)
|
0.94 |
(0.59-1.50) |
| 75+ |
0.72** |
(0.55-0.94) |
0.63** |
(0.40-0.98) |
| Social
Group(ref.= others) |
|
|
|
|
| STs
& SCs |
0.63*** |
(0.46-0.86) |
0.68* |
(0.43-1.08) |
| OBCs |
0.75** |
(0.56-1.00) |
1.39** |
(1.01-1.91) |
| Education
(ref.= illiterate) |
|
|
|
|
| Literate |
1.44** |
(1.01-2.06) |
1.09 |
(0.80-1.50) |
| Living
Status (ref.= living with spouse) |
|
|
|
|
| Living
without spouse |
0.64*** |
(0.51-0.81) |
0.40*** |
(0.26-0.60) |
| Living
Arrangement (ref.= living with family) |
|
|
|
|
| Living
without family members |
>0.74** |
(0.56-0.97) |
1.34 |
(0.80-2.24) |
| Living
with others |
1.13 |
(0.79-1.62) |
0.85 |
(0.55-1.32) |
| MPCE@
quintiles (ref.= quintile1) |
|
|
|
|
| Quintile2 |
1.44*** |
(1.15-1.81) |
1.49* |
(0.94-2.37) |
| Quintile3 |
1.83*** |
(1.37-2.45) |
1.27 |
(0.82-1.97) |
| Log
likelihood |
-1185.1 |
-605.23 |
| LR
chi2 |
122.27 |
60.08 |
| Prob.
> chi2 |
0.001 |
0.001 |
*** p< 0.001, **p< 0.05,
*p< 0.10, MPCE@- monthly per capita expenditure,
Reference category - rc
Results reveal that better socio-economic
status is closely associated with greater utilization
of health care services among older persons. In both
states, the likelihood of accessing health care services
among older persons increased with MPCE quintiles. Literate
older persons were more likely to seek treatment for
reported disabilities compared with illiterates. Older
persons belonging to backward social classes i.e. SCs/STs
were less likely to seek treatment. Older persons of
OBCs had 25% lesser chances of utilizing health care
services in Uttar Pradesh compared with older persons
in other social classes. This was contrasted in Kerala
with OBCs older adults reporting greater utilization
of health care services.
Loss of spouse in old
age is often associated with poor health outcomes and
less or no desire to live longer among older persons.
Consequently, older persons who experienced spouse loss
were at greater risk of not seeking treatment for reported
disabilities. In Uttar Pradesh, older adults living
without spouse were 36% less likely to access health
care services compared with those living with their
spouse. A similar pattern was observed in Kerala. However,
living arrangements of older persons did not show a
significant impact on their treatment seeking behavior.
DISCUSSION AND CONCLUSION
Compared with developed countries,
the pace of population ageing is much faster in developing
countries like India. Consequently, they will have less
time to adjust to the consequences of population ageing.
The increasing longevity has now presented a new challenge
for policy makers to ensure the well-being of the enormous
number of the elderly (Medhi, 2007). As a result of
the faster pace of demographic transition and advancement
in health transition stages, the Indian states are characterised
by higher disability burden among the older adult population.
Set to the above context, this paper has documented
critical evidence on the patterns of disability and
health care utilization among older persons with respect
to socio-economic and demographic determinants.
The study has substantiated
that Kerala, which is in an advanced stage of health
transition had a higher burden of disabilities compared
with Uttar Pradesh, the state lagging in these processes.
With several states advancing in the process of health
transition, most of the Indian states will be distressed
with the increasing burden of disabilities among older
adults in the coming decades. At the same time, reporting
of multiple disabilities is common among older persons
and it is expected to rise more consequent with the
progress in health transition stages. The rising burden
of disabilities will demand for an expanded health care
and support system, which is still in a very pathetic
situation in India.
Results from this study confirm
that there are substantial disparities in disability
prevalence among older persons and their treatment seeking
behavior between Uttar Pradesh and Kerala by gender,
residence and socio-economic conditions. In both the
states, disabilities were concentrated more in rural
than urban areas. A plausible explanation can be given
that health care services are more concentrated in urban
areas and are supposed to provide quality health care
services. At the same time, older adults living in urban
areas are more advantaged in terms of awareness and
exposure to better household environment, therefore
have higher chances of seeking treatment. Furthermore,
locomotion disabilities were more pronounced in urban
areas, which could be an outcome of sedentary life-style
practices among urban dwellers. For some extent, better
reporting of disabilities by the urban adults could
also be responsible for this. The same reason could
be cited for the greater reporting of disabilities among
older persons of higher income quintiles.
There is ample evidence which
shows that better socio-economic conditions are associated
with greater utilization of better and high quality
health care (Cutler et al., 2008; Khetarpal et al.,
1996; Kumar, 2003; Mazumder, 2007; Smith, 2007).
In both the states, chances of seeking health care were
higher among literate older persons. Similarly, health
care utilization was positively associated with monthly
per capita expenditure quintiles.
Living arrangement has its own
significance on health and well being of older populations,
particularly in traditional societies such as India.
Traditionally, younger generations are supposed to take
responsibility for their older counterparts in the house.
In addition to fulfilling basic daily requirements,
younger generations were used to provide emotional,
social and mental support to their previous generations.
Rapid urbanization and movement of younger generations
from their home in the search of career advancement
have tended to weaken traditional systems and ancestral
values in Indian societies (Bhat et al., 2001; Chanana
and Talwar, 1987; Pal, 2004; Prakash, 2007; Shah, 1999).
Consequently, disabilities were more pronounced among
older adults living without their spouses. At the same
time, level of health care utilization was lower among
them compared with those living with spouses.
The shift in disability prevalence
is clearly evident in Kerala and other Indian states
are expected to pass these stages of health transition.
The observed differences in the effects of various socio-economic
and demographic determinants of disabilities and related
health care between Uttar Pradesh and Kerala are largely
the result of apparent lag in health transition stages
of the two states. Diseases, particularly multiple chronic
illnesses, are the main causes of old age disabilities.
Interventions should therefore include their prevention
and effective management, including self-management.
An important starting point for successful prevention
is to use the available evidence to dispel the old myths
that the risk of disease is a normal part of old age
and not amenable to change, and that an old body cannot
respond positively to lifestyle changes. The promotion
of physically active lifestyles is among the most promising
strategies. Improved disability prevention will require
a change in organizational priorities, restructuring
of the symptom-driven health care system, and training
for providers and clients to cooperate in collaborative
care. Many interventions are most effective in concert
with community resources and policies (Heikkinen,
2003).
Health promotion and cost-effective
interventions based on the primary health care approach
over a life-course, especially at the village level,
will greatly help towards achieving the goal of healthy
aging (Kumar, 2003). In addition to this, the
rapidly changing socio-economic circumstances and inter-state
disparities should be taken care to ensure a comprehensive
policy regime for older persons in India.
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